By Raun K. Kaufman, Author AUTISM BREAKTHROUGH and Director
of Global Education
Often, we just barrel through the holidays, hoping for the best - but dreading the worst. But, I promise, it is possible to make your holiday experience fun, relaxed, and special for your special child(and for you). I know all the amazingness that your child is capable of. In addition to being the Director of Global Education for the Autism Treatment Center of America® and having worked with families and their children on the autism spectrum for the past 15 years, I had my own personal autism adventure.
At a young age, I was diagnosed
with severe autism, with no language, eye contact, or communication of any
kind. Completely encapsulated in my own world, I would rock back and forth and
flap my hands for hours on end. My parents were told that I was destined to
spend my life in an institution. Refusing to give up on me, my parents created
The Son-Rise Program® in an effort to
reach me. Rather than forcing me to conform to a world that I didn't
understand, they began by joining me in my world first.
It worked. After three and a
half years, I recovered completely with no trace of my former condition,
graduating from the Ivy League's Brown University. And the method that helped
me went on to help thousands of families from over 100 different countries.
I wrote my new book Autism Breakthrough (St.
Martin's Press) to give parents like you a step-by-step guide to implement the
techniques that helped me and so many other magnificent children and adults. I
am including some concepts from my book in the Helpful Holiday Hints below. I
hope that they are, indeed, helpful to you!
1) Let your child cope.
Most of our children perform
various repetitive “stimming” behaviors. An increasing body of research is
showing that these behaviors are useful and important to your child and his/her
nervous system. So, when your child starts hand-flapping, asking the same
question over and over, or lining up toy cars, allow your child to do this. In
fact, it can be even more helpful if you join your child in these behaviors!
That's right, join your child in the very behaviors that everyone else is
trying to stop them from doing! Flap your own hands, or line up your own toys!
This promotes, for your child, more calmness and more interaction!
2) Celebrate your child!
Most of us dread our child
behaving in a challenging way. We worry about it, we look for it, and we try to
stop it as soon as it happens. Ironically, this puts all the focus on what
we don't want from our children. If you don’t want your child to
hit, for instance, focusing on getting your child not to hit actually creates
more hitting. Instead celebrate your child every time they do something well.
If your child sometimes hits, cheer wildly every time your child is gentle!
3) Explain in advance.
Sometimes, we can be so busy
planning and getting ready for a holiday outing or project that we forget to
notify a crucial participant: our special child! Before going on a trip or
having a celebration: Explain to your child ahead of time (even if your child
is pre-verbal) what will happen and why it will be fun for him/her.
4) Give your family the heads-up.
Many of us, at times, feel
frustrated with members of our extended family for not being more understanding
and responsive when it comes to our child on the spectrum. But, remember, if
your extended family members don't live with your child, they won't "get
it." If you are visiting family with your child, send them an e-mail to
explain what they can do to make the visit comfortable for you and your child.
Explain why sudden loud noises might be problematic, or tell everyone the
answer your child likes to hear when he or she asks over and over, “How fast
does your car go?”
5) Designate a mellow room.
It's very common to go to
someone else's house for a holiday celebration. Usually, we just take our child
and hope for the best, thinking that we don't have a lot of control over the
matter. But we do! If you are going to someone else’s house with your child,
designate, in advance, a calm room or space where your child can go to
decompress once they begin to be overwhelmed by all of the commotion and
sensory input that comprise most celebrations. Every so often, take your child
to this room and spend some time alone with him/her.
6) Mimic an outing without leaving your home!
Children on the autism spectrum
will always do better when they are not over-stimulated by the many sights,
sounds, smells, and unpredictable events of the outside world. You can create
an experience in your home that you normally would go out for. For instance,
instead of going to an evening parade with a festival of lights, you can put
Christmas lights all around your house, turn off all the lights, and play
Christmas music at a gentle volume. You may be concerned about depriving your
child of a fun holiday experience, but keep in mind that when your child can’t
digest the experience, they’re not having the fun experience you want, anyway.
That’s why, if you can create a digestible version of the experience at home,
your child can take in and enjoy the experience. By doing this, you are
actually giving your child more, not less!
7) Avoid food fiascos.
Yes, it's the holidays. Sugary,
wheat-filled, dairy-crazy foods abound. It can be tempting to allow our
children to partake in this glorious cornucopia. Don't give in to this
mighty temptation! The meltdowns, overeating, challenging behavior, and
diarrhea that will result will not be
worth it, I assure you! Taking the forethought to either keep these foods away,
or, better yet, not have them around at all will make your whole holiday
experience a hundred thousand times easier.
8) Take the holiday spirit home.
So often, we get caught up in
the trappings of the holidays – the tree, the presents, the outings that have
to go exactly as planned. It’s okay to arrange fun things, but remember that
these are only trimmings. They aren’t the gift, they’re just the wrapping. The
gift is your special child. The gift is sharing hope and sweetness with the
people you love. Instead of using the holidays as a planning fest, use it to
see the beauty in your child’s uniqueness. Use it to celebrate what your child can do, and use it to feel and
encourage compassion for your child’s very different way of experiencing the
world.
This is great advice! I would also include transition items (small toy, book, and backups in case it gets left on a plane, train, or other location); comfort items (like a special blanket, head phones--beats are great, & ipod is genius; huge family table event not recommended--eat separately beforehand then set a time limit at the table so he/she gets to experience, but not be overwhelmed. Lots of love!
ReplyDeletevery helpful, thanks Raun, I know a lot of us, planning a special evening!! In my case, I chose not to fly to Mexico (11 hour plane is not the best for any kid) and me with a 2 year old plus my angel, but definitively this blog helped me with the special room, we actually have a playroom at grandma´s in Belgium, and my son continuously wants to go in. Now the bell rings!! he is being agitated and looks for his quietness, even if we don´t play that much. he wants to be there!. I love all of you Kaufman family, thank you for deciding to continue in this path, and thanks Raun for your very lovely autism. Greetings form freezing Germany. Ivette
ReplyDeleteOh my god Raun
ReplyDeleteJust on time
I hope I can do it the way you described
Happy holidays to you and your family
thanks for the orientations
ReplyDeleteGracias por tus consejos,gracias por darnos esperanza,bendiciones Raun.
ReplyDelete